So I don't really get a lot of response on that front.
It can be frustrating that everyone just sees you as a friend and it can feel like no one has considered finding you attractive.
I think there is also an assumption that if you date someone with a disability, you will become their carer.
In this week's Sex Talk Realness, spoke with five women about their experiences with sex, dating, and living with a body that doesn't always work the way you want it to. However, I'm aware that I'm very lucky to have the use of my body and to be in good health; to be physically independent is a priceless gift.
The symptoms range from mild dizziness and brain fog to completely debilitating autonomic nervous system dysfunction. Now, I have regained mobility through ongoing biofeedback treatment and can go throughout my average day with mild to moderate symptoms like increased heart rate and pain. I feel like I'm very aware of how fragile the body is. It also pushed me to seek advice from a high-risk ob-gyn — literally years before I'm planning on having children, just so I could get an idea of what pregnancy — or infertility — would look like for someone with my disease. I still worry that some of my essential medications might hurt a pregnancy. I was a teenager when I had my injury, so my body was in a state of change anyway.
In reality, I have carers and whilst a partner may do some aspects of care, I would want to maintain a high level of independence.
Woman E: My current boyfriend feels protective toward me, but there's no negative impact because of it.Other areas are also heightened — if a man pays enough attention to my neck, that can induce orgasm. Usually I'm the first disabled woman a man has slept with so I have to make sure they're at ease with it all, though it is incredibly sexy when a man takes control and doesn't treat me like a crystal vase that will break on throw down.Woman C: I have to be mindful of and respect my physical limitations so that I don't overdo it and pass out.Woman D: Obviously anorexia means I have a difficult relationship with my body.I have dipped into anorexic behavior in the past and eventually managed to pull myself out by focusing on how strong my body is and all the things I can do physically.Sometimes I have good weeks where I'm all about it — but the majority of the time I have to really focus to get in the mood.